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NEW YORK
Email Ralph

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for people with disabilities in New York?

Join or start a conversation in the Collaborating Voices forum.

Emergency Telephone Resources
State Emergency Response & Preparedness

Katrina, homelessness, and foodbank resources
State Services - education, employment, housing, medical, food, senior, and financial.

Disability Resources including ADA, ARCs, Arthritis/Skeletal & skin disabilities, Assistive Technology, Autism, Auto-immune, Blindness, Brain & Spinal Injury, Centers for Independent Living, Cerebral Palsy, Cystic Fibrosis, Deafness, Developmental Disability, Down syndrome, Easter Seals, Learning Disability, Legal Help, Mental Health, Neurological, Parenting, Recreation & Arts,
and more.
Google
 
Web www.katrinadisability.info

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EMERGENCY RESOURCES
Emergency First Responders - 911
Information & Referral - 211
TTY Relay - 711 (if you are Deaf, use this not 911)
Speech to Speech Relay 877-662-4234

Skip to disability resources

Emergency Management

State Emergency Management Office
1220 Washington Avenue
Suite 101, Building 22
Albany, NY 12226-2251
email: postmaster@semo.state.ny.us
http://www.nysemo.state.ny.us/


State Emergency Coordination Center - Staffed 24 Hrs
(518) 457-2200

Office of Homeland Security - NYC
State of New York
633 Third Avenue
New York, NY 10017
212-867-7060
http://www.security.state.ny.us/ohs_contact_info.html

Office of Homeland Security
1220 Washington Avenue
State Office Campus
Building 7A Suite 710
Albany, NY 12242
518-402-2227
http://www.security.state.ny.us/ohs_contact_info.html

State Terrorism Tips Line: 1-866-SAFE-NYS

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Hurricane Katrina

Hurricane Katrina:
http://www.state.ny.us/katrina/index.html

New York State Hurricane Katrina Assistance Hotline: 1-888-7-NYS AID

Information for Victims of Hurricane Katrina - A Message from Commissioner Richard P. Mills

http://usny33.nysed.gov/katrina/
"All of New York State welcomes those from the Gulf States who need care, shelter, food, education and the opportunity to rebuild. We invite them into our neighborhoods and schools and colleges. We will do all we can to help them resume normal lives. School districts across New York, under the Federal McKinney-Vento Homeless Education Assistance Act, will expedite preparations to accept school children displaced by Hurricane Katrina. This will help minimize the disruption caused to children in grades Kindergarten through 12th.


Many New York State colleges and universities (public, independent and proprietary) are offering expedited admissions and waivers or assistance with tuition and fees to students, who were attending colleges and universities in Louisiana, Mississippi and Alabama, and who have had their educations interrupted as a result of Hurricane Katrina. Our public universities have been directed to offer immediate admission to all displaced students and will be providing in-state tuition rates at all 64 State University of New York (SUNY) and all 20 City University of New York (CUNY) campuses to displaced students.

* Information About Higher Education Opportunities in New York State http://usny33.nysed.gov/katrina/ohe1.htm

School-Age Children Information
* Crisis Response - Website Resources for Helping Children, Adolescents, and Adults Cope During Times of Crisis http://www.mhric.org/scss/crisis.html
* Diploma Requirements for Students Entering New York State High Schools as a Result of Hurricane Katrinahttp://usny33.nysed.gov/katrina/emsc1.htm
* EMSC K-12 Q&Ahttp://usny33.nysed.gov/katrina/emsc2.htm
* Enrollment of Students Who Are Victims of Hurricane Katrina http://www.emsc.nysed.gov/deputy/Documents/alerts/katrina-enrollment.html
* Homeless Education - For specific information about how to enroll homeless students as a result of Hurricane Katrina and other critical information about obtaining student records.http://www.emsc.nysed.gov/nyc/homeless/


Vocational and Educational Services for Individuals with Disabilities Information
* Enrollment of Students who are Victims of Hurricane Katrina http://usny33.nysed.gov/katrina/vesid1.htm

NYS Hurricane Katrina Assistance Hotline

The New York State Hurricane Katrina Assistance Hotline at 1-888-7-NYS AID is the number New Yorkers should call if they are able to offer long-term and vacant housing resources that could be used to house evacuees from Hurricane Katrina. These resources will be included in a national inventory that FEMA is developing. In addition, any Katrina victims that are already in New York State should call 1-888-7-NYS AID to register with the State to ensure that they can receive the support and benefits they deserve.

New York State Commission on Quality of Care and Advocacy for Persons with Disabilities (CQCAPD)

The New York State Commission on Quality of Care for the Mentally Disabled (CQC) and the New York State Office of Advocate for Persons with Disabilities (OAPwD) have been merged to form a new agency, the New York State Commission on Quality of Care and Advocacy for Persons with Disabilities (CQCAPD).

Our Information and Referral (I&R) service can provide information and technical assistance and direct you to a provider in your geographic area that may be able to further assist you with your request. The agency has access to a wealth of information on the local, state and national level which may provide the exact information and assistance to meet your needs.

New York State individuals with disabilities or their advocates call:
CQCAPD (CQC) – 1-800-624-4143 (voice and TDD) - http://www.cqc.state.ny.us
CQCAPD (OAPwD) – 1-800-522-4369 (voice and TDD) -http://www.oapwd.org
NYS Commission on Quality of Care and Advocacy for Persons with Disabilities
401 State Street, Schenectady, New York 12305-2397

How New York State has helped Katrina Survivors

New York State page- multiple articles
http://www.ny.gov/katrina/index.html

LAUNCH OF NEW YORK NATIONAL GUARD AIRCRAFT AND CREWS FOR HURRICANE RITA SUPPORT
http://www.ny.gov/governor/press/05/sept23_2_05.htm
September 23, 2005

NYS TROOPERS WILL AUGMENT HURRICANES KATRINA, RITA RELIEF EFFORTS http://www.ny.gov/governor/press/05/sept26_1_05.htm September 26, 2005

NY NATIONAL GUARD TO DELIVER HIGH-TECH COMMUNICATIONS EQUIPMENT TO LOUISIANA IN SUPPORT OF HURRICANE RECOVERY EFFORTS http://www.ny.gov/governor/press/05/sept28_05.htm September 28, 2005

GOVERNOR PATAKI, COMMISSIONER MILLS ANNOUNCE NEW STATE EFFORTS TO ASSIST VICTIMS OF KATRINA http://www.state.ny.us/governor/press/year05/sep03_1_05.htm September 3, 2005

GOVERNOR PROVIDES UPDATE ON STATE EFFORTS TO ASSIST WITH HURRICANE KATRINA RELIEF EFFORTS http://www.state.ny.us/governor/press/year05/sep03_2_05.htm September 3, 2005

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EDUCATION

Homeless Education
New York State Education Dept.
Room 375 EBA
Washington Avenue
Albany, NY 12234
Phone: (518) 473-1236
Fax: (518) 474-7948
Email: pmcguirk@mail.nysed.gov

New York State Education Department
89 Washington Avenue
Albany, New York 12234
Web: http://www.nysed.gov/

State Department of Education: Special Education
Office of Vocational and Educational Services for Individuals with Disabilities

State Education Department
1 Commerce Plaza, Room 1606
Albany, NY 12234
(518) 474-2714
http://www.nysed.gov/

Youth Educational School Services of Family Empowerment

225 Dolson Avenue, Suite 403
Middletown, NY 10940
(845) 343-8100
Email: momalley@familyempowerment.org
Web: http://www.familyempowerment.org

VESID Special Education Policy Unit

http://www.vesid.nysed.gov/specialed/policy/home.html

Office of Vocational and Educational Services for Individuals with Disabilities (VESID)
Web: http://www.vesid.nysed.gov/

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HOUSING

HUD

New York City Regional Office
Jacob K. Javits Federal Building
(Broadway - between Duane & Worth Streets)
26 Federal Plaza
Room 3541
New York, New York 10278-0068
Phone: (212) 264-8000
Fax: (212) 264-2780
TTY: (212) 264-0927

Albany Field Office
52 Corporate Circle
Albany, NY 12203
Phone: (518) 464-4200
Fax: (518) 464-4300
Buffalo Field Office
465 Main Street, 2nd Floor
Buffalo, NY 14203
Phone: (716) 551-5755
Fax: (716) 551-5752
TTY: (716) 551-5787
Syracuse Field Office
128 E. Jefferson Street
Syracuse, NY 13202
Phone: (315) 477-0616
Fax: (315) 477-0196

HUD General inquiries: 1-800-955-2232
TTY: 1-800-877-8339

HUD Katrina/Rita Assistance: 1-866-373-9509
TTY 1-800-877-8339


Coalition for the Homeless
129 Fulton Street
New York, NY 10038
Telephone: 212-776-2000
Facsimile: 212-964-1303
Email: info@cfthomeless.org

NYS Rural Housing Coalition
Phone: (518) 458-8696
Email: rhc@ruralhousing.org
http://www.ruralhousing.org/

Division of Housing and Community Renewal
1-866-ASK-DHCR (1-866-275-3427)
http://www.dhcr.state.ny.us/

Albany
38-40 State Street
Albany, NY 12207
Phone: 518-402-3728
New York City
25 Beaver Street
New York, New York 10004
Phone: 212-480-6700

Supportive Housing Network of New York
http://www.shnny.org/

475 Riverside Dr., Suite 250
New York NY 10115
(212) 870-3303
fax: (212) 870-3334
761 Madison Avenue
Albany, NY 12208-3604
(518) 465-3233
fax: (518) 465-4446

Shelter and Emergency Housing
*Families: http://www.hud.gov/local/ny/homeless/familiesshelters.cfm
*Woman's: http://www.hud.gov/local/ny/homeless/womenshelters.cfm
*Men's: http://www.hud.gov/local/ny/homeless/menshelters.cfm
*Youth: http://www.hud.gov/local/ny/homeless/youthshelters.cfm
*General: http://www.hud.gov/local/ny/homeless/generalshelters.cfm

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FOOD

Food Stamps
New York Information/Hotline Number
: 1-800-343-8859
(upstate): 1-800-342-3009
How to Apply: 1-800-342-3009

Child and Adult Care Food Program: 1-800-942-3858

Growing Up Healthy Hotline
: 1-800-522-5006

WIC
Bureau of Supplemental Food Programs
Division of Nutrition
New York State Department of Health

150 Broadway, Flr 6, West
Albany, NY 12204-2719
telephone: (518) 402-7093
toll-free in-state: 1-800-522-5006
fax: (518) 402-7348
email: tmm05@health.state.ny.us
http://www.health.state.ny.us/prevention/nutrition/wic/

Food Bank For New York City
Office: 90 John Street
Warehouse: 355 Food Center Dr.
New York, NY 10038
Phone: 718-991-4300
Fax: 718-893-3442
gflanagan@foodbanknyc.org
http://www.foodbanknyc.org

Food Bank of Central New York
6970 Schuyler Road
East Syracuse, NY 13057-9791
Phone: 315-437-1899
Fax: 315-434-9629
kbelcher@foodbankcny.org
http://www.foodbankcny.org

Food Bank of Western New York
91 Holt Street
Buffalo, NY 14206
Phone: 716-852-1305
Fax: 716-852-7858
Clem:ceckert@foodbankwny.org
http://www.foodbankwny.org


Food Bank NE New York
965 Albany Shaker Road
Latham, NY 12110-1409
Phone: 518-786-3691
Fax: 518-782-9218
Mark:mquandt@secondharvest.org
http://www.regionalfoodbank.net

Food PATCH
358 Saw Mill River Road, 2nd Fl.
Millwood, NY 10546
Phone: 914-923-1100
Fax: 914-923-1198
Email: foodpatch@advinc.com
http://www.foodpatch.org

Foodlink, Inc.
936 Exchange Street
Rochester, NY 14608-2801
Phone: 585-328-3380
Fax: 585-328-9951
jaime@foodlinkny.org
http://www.foodlinkny.org

City Harvest
575 Eighth Avenue, Fourth Floor
New York, NY 10018
Phone: 917-351-8700
Fax: 917-351-8720
http://www.cityharvest.org

Island Harvest
199 Second Street
Mineola, NY 11501
Phone: 516-294-8528
Fax: 516-747-6843
lorraine@islandharvest.org
http://www.islandharvest.org

Long Island Cares, Inc.
10 Davids Drive
Hauppauge, NY 11788
Phone: 631-582-FOOD x102
Fax: 631-273-2184
Lynn Needelman: lneedelman@licares.org
http://www.licares.org

Other Programs
http://www.fns.usda.gov/fsp/outreach/states/new-york.htm

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FINANCIAL HELP

Help With Utilities
* Home Energy Assistence Progam (HEAP)
http://www.otda.state.ny.us/otda/heap/
* NYSERDA: 1-866-NYSERDA (Toll Free) or 518-862-1090 (Local)http://www.nyserda.org/programs/Residential_Low_Income/default.asp?i=18
* New York's Energey Smart Website: http://www.getenergysmart.org/

Temporary Assistance to Needy Families
http://www.otda.state.ny.us/otda/ta/default.htm

Clothing Resources
http://www.hud.gov/local/ny/homeless/clothing.cfm

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MEDICAL CARE

New York State Department of Health
Corning Tower
Empire State Plaza,
Albany, NY 12237
http://www.health.state.ny.us/

New York State Office of Mental Health
44 Holland Avenue
Albany, New York 12229
1-800-597-8481 (toll-free)
http://www.omh.state.ny.us/

Office of Medicaid Management
Governor Nelson A. Rockefeller Empire State Plaza, Corning Tower Building
Albany, NY 12237
Local: 1-518-486-9057
Toll-Free: 1-800-541-2831
Fax: 1-518-486-6852
E-mail: medicaid@health.state.ny.us

Medicaid Helpline (518) 486-9057
* Medicaid Co-Payment Hotline 1-800-541-2831
* Medicaid Newborn Helpline 1-877-463-7680
* New York City 1-800-505-5678
* Nassau County 1-888-562-9092
* Suffolk County 1-888-566-9799

Programs for Children with Special Health Care Needs
Bureau of Child and Adolescent Health

Department of Health
Tower Building, Room 208
Albany, NY 12237-0618
(518) 474-2084
Email: nhr02@health.state.ny.us

Child Health Plus

1-800-698-4KIDS (1-800-698-4543)
TTY: 1-877-898-5849
http://www.health.state.ny.us/nysdoh/chplus/index.htm

Family Health Plus
1-877-9FHPLUS (1-877-934-7587)
http://www.health.state.ny.us/nysdoh/fhplus/index.htm

Prenatal Care Assistance Program (PCAP)
1 (800) 522-5006
http://www.health.state.ny.us/nysdoh/pcap/index.htm

Hospitals: http://www.health.state.ny.us/nysdoh/hospital/index.htm

AIDS
* General Information
1-800-541-AIDS
* General Information, Spanish Language
1-800-233-7432
* AIDS Drug Assistance Program (ADAP)
1-800-542-2437

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EMPLOYMENT

NYS Department of Labor
W. Averell Harriman State Office Campus
Building 12
Albany, NY 12240
518-457-9000
1-800-HIRE-992
nysdol@labor.state.ny.us
TTY/TDD 1-(800)-662-1220
Voice 1-(800)-421-1220
http://www.labor.state.ny.us/working_ny/working_ny.html

Workforce New York
New York State Department of Labor
State Campus, Building 12
Albany, New York 12240
Phone: (518) 457-0380
Fax: (518) 457-9526
http://www.workforcenewyork.org/

State Vocational Rehabilitation Agency
Office of Vocational and Educational Services for Individuals with Disabilities

State Education Department
1 Commerce Plaza, Room 1606
Albany, NY 12234
(518) 474-2714
http://www.nysed.gov/

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SENIOR RESOURCES


Gray Partners

New York
165 West 86th Street
New York, NY 10024
Office: 212-799-7572
Judy: 212-682-6569
http://www.geocities.com/graypanthersny/
Suffolk County
PO Box 1395
Ronkonkoma, NY 11779
Blanche: 631-471-6614
George: 631-665-6383

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Google
Search WWW Search katrinadisability.info

RESOURCES FOR PEOPLE with DISABILITIES

Disabilities Network of NYC
Help build the Disabilities Network of NYC in 2005-2006, and increase civic
participation of people with disabilities in the Big Apple. Get your friends
and associates involved.

Phone: 212.251.4092
Lawrence Carter-Long : LCarterLong@uwnyc.org
http://www.dnnyc.net

ADAPT

Rochester NY ADAPT
Bruce Darling
585/546-7510
bdarling@rochestercdr.com
New York City ADAPT
Nadina LaSpina
212/727-0789
646/486-3719 fax
nlaspina@ix.netcom.com

NYS Commission on Quality of Care and Advocacy for Persons with Disabilities
401 State Street
Schenectady, New York 12305-2397
800-624-4143
info@cqcapd.state.ny.us
http://www.cqc.state.ny.us/

Disabled Dealer of Upstate New York
We provide a publication for people with disabilities, offering new and used adaptive equipment, vehicles, events, resources, etc., items for sale listed from individuals, and business. No charge for copies.
P.O. Box 341
Falconer, NY 14733
(716) 664-9094; (716) 484-7018 (fax)
Email: ddmuny@disableddealer.com

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ADA

Regional ADA Technical Assistance Agency
Northeast Disability and Business Technical Assistance Center

Program on Employment and Disability
Cornell University
107 ILR Extension
Ithaca, NY 14853
(607) 255-8348; (607) 255-2891
Email: ah45@cornell.edu
http://www.ilr.cornell.edu/edi/

Disability Design
Evaluation and design consultant for home modifications specifically for people with disabilities (no construction). ADA compliance reports, accessibility reports & recommendations, plans & specifications.
PO Box 1
Olivebridge, NY 12461
(845)657-2210; (845) 657-2210 (fax)
Email: malkines@hvc.rr.com
http://www.malkine.com/family/gilles

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Arc

New York State ARC, Inc.
393 Delaware Avenue
Delmar, NY 12054
(518) 439-8311; (800) 724-2094
Email: brandtm@nysarc.org
http://www.nysarc.org/

Saratoga ARC
2902 Route 9
Ballston Spa, NY 12020
(518) 587-0723
saratogaarc@saratogaarc.org
http://www.saratogaarc.org

Montgomery ARC
1467 State Highway 5-S
Amsterdam, NY 12010
(518) 842-5080
info@libertyarc.org
http://www.libertyarc.org

Erie Arc
101 Oak Street
Buffalo, NY 14203
(716) 856-4201
www.heritagecenters.org/

Warren/Washington
375 Bay Road, # 200
Queensbury, NY 12804
(518) 793-4204
http://www.wwarc.org

Steuben Arc
6838 Industrial Park Road
Bath, NY 14810-8315
(607) 776-4146
http://www.steubenarc.com/

Niagara
1555 Factory Outlet Boulevard
Niagara Falls, NY 14304
(716) 297-6400
cbrown@buffnet.net

Putnam ARC
Terravest Corporate Park
31 International Blvd
Brewster, NY 10509
(845) 278-7272

Nassau AHRC
189 Wheatley Road
Brookville, NY 11545
(516) 626-1000

New Visions
334 Krumkill Road
Slingerlands, NY 12159
(518) 459-0750

Broome Tioga
125 Cutler Pond Road
Binghampton, NY 13905
(607) 723-8361

Clinton
9 Industrial Blvd
Plattsburgh, NY 12901
(518) 563-0930

Wayne
150 Van Buren Street
Newark, NY 14513
(315) 331-7741



Westchester Arc
74 Westmoreland Avenue
White Plains, NY 10606
(914) 428-8330
info@westchesterarc.org
http://www.westchesterarc.org/

Herkimer Arc
350 South Main Street
Herkimer, NY 13350
(315) 866-2920
info@herkimerarc.org
http://www.herkimerarc.org

Lawrence
6 Commerce Lane
Canton, NY 13617
(315) 379-9531
http://www.slnysarc.org

Erie
101 Oak Street
Buffalo, NY 14203
(716) 856-4201
http://www.heritagecenters.org/

Columbia
PO Box 2,Rt 217
Mellenville, NY 12544
(518) 672-4451
http://www.coarc.org

Madison/Cortland
701 Lenox Avenue
Oneida, NY 13421-1523
(315) 363-3389
mcarc@madisoncourtlandarc.org

Monroe
985 Elmwood Avenue, Bldg. 101
Rochester, NY 14620
(585) 672-2200
http://www.arcmonroe.org/

Chenango
17 Midland Drive
Norwich, NY 13815
(607) 334-5366

Allegany
240 O'Connor Street
Wellsville, NY 14895
(585) 593-5700

Genesee
64 Walnut Street
Batavia, NY 14021-0988
(585) 343-1123

Sullivan
934 East Broadway
Monticello, NY 12701
(845) 796-1350

Dutchess Arc
8 Industry Street
Poughkeepsie, NY 12603-2618
(914) 485-5606


The Resource Center
880 East Second Street
Jamestown, NY 14701
(716) 483-2344
info@resourcecenteronline.org
www.resourcecenteronline.org

Cattaraugus Arc
The Rehab Center
1439 Buffalo Street
Olean, NY 14760
(716) 375-4747
trcinfo@rehabcenter.org

Schoharie
PO Box 307, Rt 30
Schoharie, NY 12157
(518) 295-8130
http://www.schohariearc.org

Oswego
7 Morrill Place
Fulton, NY 13069
(315) 598-3108
http://www.arcofoswegocounty.org

Oneida-Lewis
245 Genesee Street
Utica, NY 13501
(315) 735-6477
http://www.thearcolc.org/

Seneca/Cayuga
1083 Waterloo Geneva
Waterloo, NY 13156
(315) 539-5067
http://www.sencayarc.org/

Suffolk AHRC
2900 Veterans Memorial Highway
Bohemia, NY 11716-1193
(631) 585-0100


NYC AHRC
200 Park Ave S, 4th Floor
New York, NY 10003
(212) 780-2662

Onondaga
600 South Wilbur Avenue
Syracuse, NY 13204
(315) 476-7441

Ulster/Green
471 Albany Avenue
Kingston, NY 12401
(845) 331-4300 Ext 287

Yates
235 North Avenue
Penn Yan, NY 14527
(315) 536-7447

Rockland
25 Hemlock Drive
Congers, NY 10920
(845) 267-2500 Ext 3275

Ontario Arc
2891 County Road 46
Canandaigua, NY 14424
(716) 394-7500
ontarc@frontiernet.net
http://www.ontarioarc.org/

Rensselaer County
415 River Street
Troy, NY 12180
(518) 274-3110
http://www.rensselaerarc.org


Delaware
34570 State Highway 10,
Walton, NY 13856-9711
(607) 865-7126
http://www.delawarecountyarc.org

Otsego
35 Academy Street
Oneonta, NY 13820
(607) 433-8400
http://www.arcotsego.org

Schuyler County
203 Twelfth Street
Watkins Glen, NY 14891
(607) 535-6934
http://www.arcofschuyler.org

Orleans County
122 Caroline Street
Albion, NY 14411-0439
(585) 589-5516
http://www.arcoforleans.org/

Adirondack
12 Mohawk Street
Tupper Lake, NY 12986
(518) 359-3351
http://www.adirondackarc.org

Jefferson Rehabilitation Ct
380 Gaffney Drive
Watertown, NY 13601
(315) 788-2730

Schenectady
214 State Street
Schenectady, NY 12301
(518) 372-1160

Fulton
465 North Perry Street
Johnstown, NY 12095
(518) 762-0024

Chemung
711 Sullivan Street
Elmira, NY 14901
(607) 734-6151

Orange County AHRC
249 Broadway
Newburgh, NY 12550
(845) 561-0670

 

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Arthritis, Skeletal & Skin disabilities

Arthritis Foundation

Northest New YorK
1717 Central Ave #105
Albany, NY 12205
(518)456-1203
Email: rloy@arthritis.org
Fax: (518)869-3123
Toll Free: (800)420-5554
Long Island
501 Walt Whitman Rd
Melville, NY 11747
(631)427-8272
info.li@arthritis.org
Fax: (631)427-3546
website
New York City
122 E 42nd St, 18fl.
New York, NY 10168
(212)984-8700
info.ny@arthritis.org
Fax: (212)878-5960
website
Upstate New York
3300 Monroe Ave #319
Rochester, NY 14618
Phone: 585-264-1480
info.uny@arthritis.org
Fax: 585-264-1517
website

Ehlers-Danos Syndrome Support Group
W. NY -Kathy Panepento 58 West Main St, Corfu, NY 14036
(585) 599-3868 FPANEPENTO~at~Rochester.rr.com
NYC- Jacqui at 505-480-7392 or jacqui~at~ednf.org

Little People of America
Finger Lakes- Patti Olesik: PattiMO44@aol.com
http://www.geocities.com/fingerlakeslpa/index.html
Long Island - Michael Petruzzelli: mapetruzzelli@optoline.net
Mid Hudson Michelle Burke: micjohn@optonline.net
NYC - Anna Adelson: brooklynanna@aol.com
Website: http://www.lpad2.org
Listserv: http://groups.yahoo.com/group/lpadistrict2

Scleroderma Foundation - Tri-State Chapter
59 Front Street
Binghamton, NY 13905
800-867-0885 or 607-723-2239
Fax: 607-723-2039
http://www.scleroderma.org/chapter/tristate/

Scleroderma Foundation -Western NY Chapter
P.O. Box 708
Hamburg, NY 14075-0708
716-627-2595; toll-free 1-877-WNY-CHPT
Email: wnychpt@aol.com
http://www.scleroderma.org/chapter/westny/

Marfan Support Groups
NYC - Eileen Ilberman 212-595-4660
Rochester -Gregory Head 585-482-0681 cardiacrn1961673~at~aol.com

DebRA New York Support Group (NY, NJ & CT)
Kathy Twible, rjt516~at~optonline.net
Michele Disco, ebnysg~at~yahoo.com

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Assistive Technology

New York State TRAID Project
401 State Street
Schenectady, NY 12305
Phone/TTY: 518-474-2825
Phone/TTY: 800-522-4369 (In State)
TTY: 518-473-4231
Fax: 518-473-6005
Email: traid@oapwd.org
http://www.oapwd.org/TRAID_Project/technlog

New York AgrAbility Project
Bassett Healthcare
NY Center for Ag Medicine & Health
One Atwell Road
Cooperstown, NY 13326
(800) 343-7527

Technology Resources for Education (T.R.E.) Center
Maywood School
1979 Central Avenue
Albany, NY 12205
(518) 456-9290; (518) 456-9289 (fax); (800) 248-9873
Email: David@TREcenter.org
http://www.trecenter.org

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Autism

A background of grey bricks with a puzzle piece stamped on, with the words, Getting the Truth Out, Autism Awareness
Autism Society of America

Albany Chapter
PO Box 3847
Schenectady, New York
518-355-2191
http://www.albanyautism.org/

W. New York Chapter
19 Limestone Dr #1
Buffalo, New York
(716) 633-2275

Queens County Chapter
18883 85th Road
Jamaica, New York
(718) 464-5735


Central New York Chapter
PO Box 447
Vestal, New York
(607) 754-0947
http://www.cnyasa.org/

Fulton/Montgomery County
18 E Fulton Street
Gloversville, New York
(518) 773-3109

Nassau/Suffolk Chapter
30 Baycrest Drive
Huntington, New York
(631) 271-1481
http://www.nsasa.org/index.html

Bronx Chapter
N. Central Bronx Hosp.
3424 Kossuth Ave. Rm.15A11
Bronx, New York
(718) 519-4797

Manhattan Chapter
370 E 76th St Apt C1208
New York, New York
(212) 628-0669

Brooklyn Chapter
225 Avenue 'S'
Brooklyn, New York
(718) 336-9533

AHA/AS/PDD
Advocates for Individuals with High Functioning Autism, Asperger's Syndrome and other Pervasive Developmental Disorders.
P.O. Box 475
Roslyn Heights, NY 11577
Email: patschiss@aol.com
http://www.aha-as-pdd.org

AutismConcepts.com
59 Mullock Road
Middletown, NY 10940-6196
(845) 978-3182
Email: info@autismconcepts.com
http://www.AutismConcepts.com

Autism Counseling Connection
Working with ASD individuals and their families, providing individual and group counseling, social skills programs, and support groups for teens, siblings and parents.
35 Crooked Hill Road
Commack, NY 11725
(631) 499-3343
Email: lorrie@autismcounselingconnection.com
http://www.autismcounselingconnection.com

Center for Autism & Related Disorders (CARD)
CARD is among the world's largest and most experienced organizations effectively treating children with autism and related developmental disorders. We provide information, training, supervision and therapy services throughout the US and the world.
297 Knollwood Rd., Suite 333
White Plains, NY 10607
(914) 683-3833; (914) 683-3836 (fax)
http://www.centerforautism.com

Center for Autism & Related Disorders
Provide in-home/school ABA therapy to children with Autism Spectrum Disorders throughout New York.
6 N. Main St., Suites 204-205
Fairport, NY 14450
(585) 377-6590; (585) 377-6605 (fax)
Email: d.rhine@centerforautism.com
http://www.centerforautism.com

New York Autism Network (NYAN)
http://www.albany.edu/psy/autism/autism.html

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Auto-immune disabilities

Juvernile Diabetes Research Foundation Chapter Listing
http://www.jdrf.org/index.cfm


Blind & Visually Impaired

Commission for the Blind and Visually Handicapped
Capital View Office Park
52 Washington Street, Room 201
Rensselaer, NY 12144-2796
(518) 473-1801
http://www.ocfs.state.ny.us/

New York Commission for the Blind and Visually Handicapped

Department of Social Services
40 North Pearl Street
Albany, NY 12243
Tel: (518) 473-1801
http://www.ocfs.state.ny.us/main/cbvh/

American Council of the Blind of New York
1064 Alhambra Rd SW
Baldwin, NY 11510
(516) 771-0512
(800) 522-3303

National Federation Of The Blind of New York
Apartment #1
395 Second Avenue
Albany, NY 12209-1918
Tel: (518) 463-4810

New York Divison of Services for the Blind and Visually Impaired
500 Greenwich Street, 3rd Floor
New York, NY 10013-1354
Tel: (212) 625-1616 / Fax: (212) 219-4078
http://www.visionsvcb.org/

New York Divison of Vocational Rehabilitation Services
New York State Education Department
1606 One Commerce Plaza
Albany, NY 12234
http://web.nysed.gov/

Northeastern Association for the Blind in Albany
301 Washington Avenue
Albany, NY 12206
Tel: (518) 463-1211

American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
(212) 502-7600; (212) 502-7662 (TTY)
Email: afbinfo@afb.org
http://www.afb.org/

Special Format Books for Children and Youth Ages 3-19
New York State Talking Book and Braille Library

New York State Library
Cultural Education Center
Albany, NY 12230
(518) 474-5935; (800) 342-3688
Email: tbblkids@mail.nysed.gov
http://www.nysl.nysed.gov/tbbl/index.html

Andrew Heiskell Library for the Blind and Physically Handicapped
New York Public Library

476 5th Avenue
New York, NY 10018
(212) 206-5400; (212) 206-5425
Email: pleclerc@nypl.org
http://www.nypl.org/

Pamela Wheelock, MS, Certified Braille Instructor
569 West Park Avenue
Long Beach, New York 11561
(516) 697-9970
Email: pfwheelock@yahoo.com

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Brain & Spinal Cord Injuries

Brain Injury Association of New York State
10 Colvin Avenue
Albany, NY 12206
(518) 459-7911
http://www.bianys.org

National Council for Spinal Cord Injury Association

Greater Rochester Area
P.O. Box 20516
Rochester , NY 14602
Telephone: (585) 275-6097
rochesternscia@yahoo.com
ascaramu@frontiernet.net
  The Greater New York Chapter
Mount Sinai Rehab Center
1450 Madison Avenue, 2nd Floor
New York , N.Y. 10029-6574
Ph: (212) 659-9369
NYCspinal@NYCspinal.org

Spinal Cord Injury Network of Central New York
ARISE, 635 James Street Syracuse NY 13203
Dates/Times of meetings - 3rd Wednesday of the Month 4pm
Ph: (315) 671-2907
Fx: (315) 472-9252

Long Island Spinal Cord Injury Resource Center
Ph: 631-221-WALK
email: info@testaverdefund.org
http://www.testaverdefund.org

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Cancer

America Cancer Society Chapter Listing for New York
http://www.cancer.org/asp/search/mla/mla_global.asp?sort=name

New York State Cancer Index
http://www.cancerindex.org/clink5ny.htm

General Info
# Pre-recorded tapes (Erie Co. only) - 845-3380
# Elsewhere in NYS - 1-800-462-1884

Spinal Tumor Support Group
Where: Upper West Side , NYC
When: Every Friday
Time: 1:20pm to 2:50pm
Group Leader: Deborah Lamberti, A.C.S.W
To register to attend a group, call 212.223.7148

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Cerebral Palsy

United Cerebral Palsy
Nassau County
380 Washington Ave
Roosevelt, NY 11575
(516) 378-2000
Fax: (516) 868-4089
info@ucpn.org
http://www.ucpn.org
New York City
80 Maiden Lane, 8th Fl
New York, NY 10038
Phone: (212) 683-6700
Fax: (212) 685-8394
info@ucpnyc.org
http://www.ucpnyc.org
Suffolk
250 Marcus Boulevard
Hauppauge, NY 11788
Phone: (631) 232-0011
Fax: (631) 232-4422
info@ucp-suffolk.org
http://www.ucp-suffolk.org
New York State
330 W. 34th Street
New York, NY 10001
(212) 947-5770, ext. 201
metroucpa@aol.com
http://www.cerebralpalsynys

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Centers for Independent Living

New York State
http://www.nysilc.org

Capital District Center for Independence
West Mall Office
855 Central Avenue, Suite 110
Albany, NY 12206-1504
TEL (518) 459-6422 V & TTY
FAX (518) 459-7847
Email: admincdci@nobleharbor.com
http://www.cdciweb.com/


Options for Independence
75 Genesee Street
Auburn, NY 13021
TEL (315) 255-3447 V & TTY
FAX (315) 255-0836
E-mail: opforind@aol.com

Genesee Region Center for Independent Living
61 Swan Street
Batavia, NY 14020
TEL (585) 343-4524 V & TTY
FAX (585) 343-6656
E-mail grilc@iinc.com

Southern Tier Independence Center
24 Prospect Avenue, 5th Floor
Binghamton, NY 13901-2802
TEL (607) 724-2111 V & TTY
FAX (607) 722-5646
Email:mdibble@stic-cil.org

Bronx Independent Living Services, Inc.
3525 Decatur Avenue
Bronx, NY 10467
TEL (718) 515-2800
TTY (718) 515-2803
FAX (718) 515-2844

Brooklyn Center for Independence of the Disabled
2044 Ocean Avenue, Suite B-3
Brooklyn, NY 11230
TEL (718) 998-3000
TTY (718) 998-7406
FAX (718) 998-3743
Email: zjama@bcid.org

Independent Living Center of Western New York
3108 Main Street
Buffalo, NY 14214
TEL (716) 836-0822 V & TTY
FAX (716) 835-3967
Email: djusiak@acsu.buffalo.edu

Native American Independent Living Services (NAILS)
c/o Independent Living Center of Western New York

3108 Main Street
Buffalo, NY 14214
TEL (716) 836-0822 V & TTY
FAX (716) 835-3967

Catskill Center for Independence
P. O. Box 1247, RT. 23 Southside
Oneonta, NY 13820
TEL (607) 432-8000 V & TTY
FAX (607) 432-6907
E-Mail ccfi@ccfi.us
http://www.ccfi.us/

AIM-Access to Independence and Mobility
271 East First Street
Corning, NY 14830
TEL (607) 962-8225 V & TTY
FAX (607) 937-5125
E-Mail: corning@aimcil.com
http://www.aimcil.com

AIM_Elmira
650 Baldwin Street
Elmira, New York 14901
TEL: (607)-733-3718
TTY: (607) 733-7764
FAX: (607) 733-0180
Email: eaimoffice@aimcil.com
http://www.aimcil.com

Access to Independence of Cortland County
26 N. Main
Cortland, New York 13045
TEL (607) 753-7363 [V&TTY]
FAX: (607) 756-4884
Email: maryew@odyssey.net
http://www.cilcortland.org

Glens Falls Independent Living Center
71 Glenwood Avenue
Queensbury, NY 12804
TEL (518) 792-3537
TTY (518) 792-0505
FAX (518) 792-0979
Email: gfilc@adelphia.net
http://www.gfilc.com

Saratoga County Options for Independent Living

8 Butler Place
Saratoga Springs, NY 12866
TEL (518) 584-8202 or 584-8229
TTY (518) 584-4752
FAX (518) 584-1195

Harlem Independent Living Center
289 St. Nicholas Avenue
Suite 2/Lower Level
New York, NY 10027
TEL (212) 222-7122
TTY (212) 222-7198
FAX (212) 222-7199
E-Mail: harlemilc@aol.com

Finger Lakes Independence Center
215 Fifth Street
Ithaca, NY 14850
TEL (607) 272-2433 V & TTY
FAX (607) 272-0902
E-Mail: flic@clarityconnect.com

Southwestern Independent Living Center, Inc.
843 N. Main Street
Jamestown, NY 14701
TEL (716) 661-3010
TTY (716) 661-3012
FAX (716) 661-3011
Email: info@ilc-jamestown-ny.org
http://www.ilc-jamestown-ny.org

Resource Center for Accessible Living
592 Ulster Avenue
Kingston, NY 12401
TEL (845) 331-0541
TTY (845) 331-8680
FAX (845) 331-2076
Email: rcal@hvc.rr.com
http://www.licil.net

Long Island Center for Independent Living, Inc.
3601 Hempstead Turnpike, Suite 208
Levittown, NY 11756
TEL (516) 796-0144
TEL (Espanol) (516)796-6176
TTY (516) 796-0135
FAX (516) 796-0529
Email: licil@aol.com
http://www.licil.net

Center for Independence of the Disabled in New York
841 Broadway, Suite 205
New York, NY 10003
TEL (212) 674-2300 V & TTY
FAX (212) 254-5953
Email: info@cidny.org
http://www.cidny.org

Massena Independent Living Center
156 Center Street
Massena, NY 13662
TEL (315) 764-9442 V & TTY
FAX (315) 764-9464
E-Mail: milc@northnet.org

Action Toward Independence
130 Dolson Avenue, Suite 35
Middletown, NY 10940
TEL (845) 343-4284 V & TTY
FAX (845) 342-5269
E-Mail: ati@warwick.net

A T I Sullivan County Office
33 Lakewood Avenue
Monticello, NY 12701
TEL (845) 794-4228 V & TTY
FAX (845) 794-4475
E-Mail: ati@in4web.com
http://web1.in4web.com/ati

Independent Living, Inc.
5 Washington Terrace
Newburgh, NY 12550
TEL (845) 565-1162 V & TTY
FAX (845) 565-0567
Email: dhovey@myindependentliving.org
http://www.myindependentliving.org

Niagara Frontier Center for Independent Living, Inc

1522 Main Street
Niagara Falls, NY 14305
TEL (716) 284-2452 V & TTY
FAX (716) 284-0829
Email: nfcil@iname.com

Directions in Independent Living
512 West State Street
Olean, NY 14760
TEL (716) 373-4602 V & TTY
FAX (716) 373-4604
Email: oleanilc@yahoo.com

North Country Center for Independence
102 Sharron Avenue
Plattsburgh, NY 12901
TEL (518) 563-9058 V & TTY
FAX (518) 563-0292
E-Mail: ncci@westelcom.com
http://www.ncci-online.com

Tri-Lakes CIL
P.O. Box 280
Raybrook, NY 12977
(518) 891-5295

Taconic Resources for Independence
82 Washington Street, Suite 214
Poughkeepsie, NY 12601
TEL (845) 452-3913
TTY (845) 485-8110
FAX (845) 485-3196
E-Mail: trionline@taconicresources.net
http://www.taconicresources.net

Queens Independent Living Center
140-40 Queens Boulevard
Jamaica, NY 11435
TEL (718) 658-2526
TTY (718) 658-4720
FAX (718) 658-5295
Email: arocho@qilc.org
http://www.QILC.org

Regional Center for Independent Living
1641 East Avenue,
Rochester, NY 14610
TEL (585) 442-6470 V & TTY
FAX (585) 271-8558
Email: rcil@frontiernet.net
http://www.rcil.org

Center for Disability Rights
412 State Street
Rochester NY, 14608
TEL (585) 546-7510 voice & TTY
FAX(585) 546-5643
Email: Bdarling@rochestercdr.org

Rockland Independent Living Center
230 N. Main Street
Spring Valley, NY 10977
TEL (845) 426-0707
TTY (845) 426-1180
FAX (845) 426-0989
Email:mail@rilc.org
http://www.rilc.org

Staten Island Center for Independent Living
470 Castleton Avenue
Staten Island, NY 10301
TEL (718) 720-9016
TTY (718) 720-9870
FAX (718) 720-9664
Email: dorothy.doran@verizon.net
http://www.geocities.com/siciliving/

Self Initiated Living Options, Inc.
745 Waverly Avenue
Holtsville, NY 11742
TEL (631) 654-8007
TTY (631) 654-8076
FAX (631) 654-8077

Central Islip Satellite
TEL (631) 348-0207
TTY (631) 348-7655

ARISE
635 James Street
Syracuse, NY 13203-2703
TEL (315) 472-3171
TTY (315) 479-6363
FAX (315) 472-9252
Email:tmckeown@ariseinc.org
http://www.ariseinc.org

ARISE/Oswego Center Satellite
104 West Utica Street
Oswego, New York 13126
TEL (315) 342-4088
FAX (315) 342-4107
Email: ariseosw@scsinter.net

Independent Living Center of the Hudson Valley
Troy Atrium
Broadway & 4th Street
Troy, NY 12180
TEL (518) 274-0701 V & TTY
FAX (518) 274-7944
E-Mail: dfigny@aol.com
http://www.ilchv.org

Hudson ILC / Troy Satellite
Fairview Plaza, 160 Fairview Avenue
Hudson, New York 12534
TEL (518) 828-4886
TTY (518) 828-6293
FAX (518) 828-2592
Email: ilchv@taconic.net

Resource Center for Independent Living
P. O. Box 210, 409 Columbia Street
Utica, NY 13503-0210
TEL (315) 797-4642
TTY (315) 797-5837
FAX (315) 797-4747
E-Mail: burt.danovitz@rcil.com
http://www.rcil.com/

RCIL - Amsterdam Satellite
2540 Riverfront Center
Amsterdam, NY 12010
TEL (518) 842-3561
TTY (518) 842-3593
FAX (518) 842-0905
EMAIL: Rodriguez@RCIL.com

RCIL - Herkimer Satellite
401 East German Street
Herkimer, NY 13350
TEL (315) 866-7245
TTY (315) 866-7246
FAX (315) 866-7280
EMAIL: dannym_13550@yahoo.com

Northern Regional Center for Independent Living
165 Mechanic Street
Watertown, NY 13601-2711
TEL (315) 785-8703 V
(315) 785-8704 TTY
FAX (315) 785-8612
E-Mail: aileeng@nrcil.net
http://www.nrcil.net

Westchester Independent Living Center
200 Hamilton Avenue
White Plains, NY 10607
TEL (914) 682-3926
TTY (914) 682-0926
FAX (914) 682-8518
Email: jbravo297@aol.com
http://www.wilc.org

Westchester Disabled on the Move, Inc
.984 No. Broadway
Yonkers, NY 10701
TEL (914) 968-4717 V & TTY
FAX (914) 968-6137
Email: melt@wdom.org
http://www.wdom.org

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Cystic Fibrosis

Cystic Fibrosis Foundation Greater New York
New York, NY
p: (212) 986-8783
greater-ny@cff.org

Central NY Chapter
290 Elwood Davis Rd # 318
Liverpool, NY
p: (315) 463-7965
Email: central-ny@cff.org
http://www.cff.org/Chapters/centralnewyork/

Westchester
245 Main Street #520
White Plains, NY
p: (914) 993-1460
Email: westchester@cff.org
http://www.cff.org/Chapters/westchester/

Long Island
425 Broad Hollow Road # 318
Melville, NY
p: (516) 827-1290
Email: long-island@cff.org
http://www.cff.org/Chapters/longisland/

Northeastern New York Chapter
12 Avis Drive
Latham, NY
p: (518) 783-7361
Email: ne-ny@cff.org
http://www.cff.org/Chapters/nenewyork/

Rochester Chapter
550 Latona Rd,Bldg D # 408
Rochester, NY
p: (585) 697-0777
Email: rochester-ny@cff.org
http://www.cff.org/Chapters/rochester/

Western NY
4976 Transit Road
Depew, NY
p: (716) 686-9400
Email: west-ny@cff.org
http://www.cff.org/Chapters/westernnewyork/

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Deaf, hearing impaired, and speech services

Telecommunications for the Deaf, Inc. (TDI) -
Community Emergency Preparedness Information Network (CEPIN) Project
National Coordinator: jimhouse@tdi-online.org http://www.cepintdi.org/
DEAF, Inc. (New England & Great Lakes contact)
215 Brighton Ave., Allston, MA 02134, 617 254-4041 TTY/V
http://www.deafinconline.org
Sharon Applegate, Executive Director slapplegate@rcn.com
Stephanie Clark, Regional Specialist sclark@deafinconline.org

New York State Speech-Language-Hearing Association
2 Nortnuky Lane
Latham, NY 12110
(518) 786-0947
Email: nysslha@aol.com
http://www.nysslha.org/

Empire State Association of the Deaf
President: Branton Stewart, bss1970@msn.com
http://www.esad.org/ (ESAD)

New York State Association of Self Help for Hard of Hearing People, Inc.
463 Pelham Rd Apt 4-2A
New Rochelle, NY 10805-2236
914-637-6132
mbrand3958@aol.com
http://www.nysashhh.org/

Programs for Children and Youth who are Deaf or Hard of Hearing
Office of Vocational and Educational Services for Individuals with Disabilities

State Education Department
One Commerce Plaza, Room 1601
Albany, NY 12234
(518) 474-5652 (V/TTY); (800) 222-5627 (V/TTY)
Email: dsteele@mail.nysed.gov
http://www.nysed.gov/

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Developmental Disabilities

New York State Developmental Disabilities Planning Council

155 Washington Avenue, 2nd Floor
Albany, NY 12210
(518) 486-7505
(800) 395-3372
Email: scarey@ddpc.state.ny.us
http://www.ddpc.state.ny.us/

New York State Office of Mental Retardation and Developmental Disabilities
44 Holland Avenue
Albany, NY 12229
(518) 473-1997
http://www.omr.state.ny.us/

Strong Center for Developmental Disabilities
University of Rochester Medical Center
601 Elmwood Avenue
P.O. Box 671
Rochester, NY 14642
(716) 275-2986
Email: phil_davidson@urmc.rochester.edu
http://www.urmc.rochester.edu/strong/scdd

University Center for Excellence in Developmental Disabilities
Developmental Disabilities Center
St. Lukes - Roosevelt Hospital Center
1000 10th Avenue
New York, NY 10019
(212) 523-6230

University Center for Excellence in Developmental Disabilities Education, Research and Service
Albert Einstein College of Medicine/Yeshiva University
1410 Pelham Parkway, S.
Bronx, NY 10461
(718) 430-8522
Email: hcohen@aecom.yu.edu

Early Childhood Direction Center
888 Delaware Ave.
Buffalo, NY 14209
(716) 878-7282; (800) 462-7653; (716) 878-1267 (fax)
Email: VRubin@Kaleidahealth.org

The Early Childhood Direction Center
Syracuse University
805 S. Crouse Avenue
Syracuse, NY 13244-2280
(315) 443-4444; (800) 962-5488

Rose F. Kennedy Center
1410 Pelham Parkway South
Bronx NY 10465
(718) 430-8522, Fax (718) 940-5280
Email: hcohen@aecom.ye.edu
http://www.aecom.yu.edu/CERC/default.htm

New Visions, Inc./Adopt a Special Kid (AASK) National Exchange
PO Box 499
Washington Mills NY 13479
(315) 797-4208

Prader-Willi Alliance of New York, Inc.
267 Oxford Street
Rochester NY 14607
(716) 442-1655; (800) 442-1655; (716) 271-2782 Email: alliance@prader-willi.org
http://www.prader-willi.org

National Association for the Dually Diagnosed
132 Fair St.
Kingston NY 12401
(914) 331-4336, Fax (914) 331-4569
(800) 331-5362
http://www.thenadd.org

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Down syndrome

National Down Syndrome Society & Affiliates
666 Broadway, 8th floor
New York NY 10012
212-460-9330, Fax 212-979-2873
1-800-221-4602
Email: info@ndss.org
http://www.ndss.org

Association for Children w/DS
4 Fern Place
Plainview NY 11803
516-933-4700
Fax 516-933-9524
Email: info@ACDS.org
http://www.acds.org

Genesee County, Inc.
3770 Pike Road
Batavia NY 14020
585-344-2092
downsyn@rochester.rr.com
http://www.downsyndromegenesee.org

Lewiston
4661 Lower River Rd.
Lewiston NY 14092
716-754-9397
Email: idea4down@aol.com
http://www.dspgwny.org

Trisomy 21 Foundation of N. NY
82 Public Square
Watertown NY 13601
315-788-0869
Email: tri21ny@northernfcu.net
http://www.trisomy21foundation.com

Westchester, Inc. (DSAW)
85 Candlewood Road
Scarsdale NY 10583
info@westchesterdsa.org
http:///www.westchesterdsa.org

Project H.O.P.E. LTD
8206 15th Avenue
Brooklyn NY 11228
(718) 331-9006

DS Amongst Us
32 Rutlage Street
Brooklyn NY 11211
718-834-2055,
Fax 718-834-5255
Email: downsyndrome@earthlink.net
http://www.pirchei.co.il/specl_ed/down/index.htm

DS Info Network of the Twin Tiers (DSINTT)
215 Scott Lane
Horseheads NY 14845
607-739-0272
Email: mbatters@stny.rr.com
http://www.downsyndromeintt.org

Flower City DS Network (FCDSN)
904 Holt Road #324
Webster NY 14580
585-234-2345
info@fcdsn.com
http://www.fcdsn.com/index.html

North Country
64 Prospect Avenue
Plattsburgh NY 12901
518-563-5553
Email: rotzt@westlecom.com
http://www.ncdsasite.org

Western New York, Inc.
547 Englewood Avenue
Kenmore NY 14223
716-832-9334
716-674-2591

Parent Assistance Committee on DS
26 Blackthorn Lane
White Plains NY 10606
914-739-4085
Email: amajsak@optonline.net

Hudson Valley
Taconic Dev. Ct
26 Center Circle - Bldg. 58
Wassaic NY 12592
845-877-6821 x3357
Email: MHVDSC@aol.com
http://www.dsahv.org

Down Syndrome Aim High
PO Box 12-624
Albany NY 12212
518-438-0798
Email: jaloise@aim-high.org
http://www.aim-high.org

Kennedy-Willis Ct/ Pathfinder Village
3 Chenango Road
Edmeston NY 13335
607-965-8377
info@pathfinder.tzo.com
http://www.pathfindervillage.org

Special Friends with Down Syndrome, Inc.
PO Box 1096
Sayville NY 11782
631-567-3768,
Email: info@sfwds.org
http://www.sfwds.org

Central New York, Inc.
PO Box 5
Manlius NY 13104-0005
315-682-4289
Email: dsaofcny@aol.com


Chautauqua Daisy (Down Syndrome Youth) Group
214 Arlington Ave.
Jamestown NY 14701
716-483-6687

Down Syndrome Awareness Group of Mohawk Valley
United Cerebral Palsy
1020 Mary Street
Utica NY 13501
315-738-0794 ext 223, Fax 315-724-6783
Email: dguernsey@ucp-utica.org
http://www.ucp-utica.org

Down Syndrome Network of Cayuga County
PO Box 643
Skaneateles NY 13152
315-252-6746
Email: joriliss@bci.net

Down Syndrome Resource Center, Inc.
Diane E. Lang, Medical Coordinator
7 Southwoods Blvd., 4th floor, Corporate Woods
Albany, NY 12211
(518) 641-6700
Email: dlang@unsertech.com
http://www.downsyndromeresourcecenter.org

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Easter Seals

Easter Seals New York
http://www.ny.easter-seals.org

Western Region
349 West Commercial St, #1350
East Rochester, NY 14445-2402
Phone: 585 264-9550

NYC
29 W. 36th Street, , 4th floor
New York City, NY 10018
Phone: 212 244-6053

Long Island
Park Avenue
New York, NY 10022
Phone: 518 456-4880

Albany
230 Washington Ave, Extension
Albany, NY 12203
(518) 438-8785
(800) 727-8785 (in NY)
Email: essofny@aol.com

Foxworth
1899 Foxworth Lane
Webster, NY 14580
Phone: 585 264-9550

Shalimar
10 Shalimar Drive
Rochester, NY 14618
Phone: 585 264-9550

Diagnostic & Treatment Ct
125 White Spruce Blvd
Rochester, NY 14623
Phone: 585 292-5830

Bronx Child Development Ct
1180 Rev James A. Polite Ave
Bronx , NY 10459
Phone: 718 378-1370

Project Discovery
P.O. Box 719
Port Jervis, NY 12771
Phone: 845 858-2874

Project Excel
25 St. John Street
Monticello, NY 12701
Phone: 845 794-4020

Project Explore
70 Columbus Avenue
Valhalla, NY 10595
Phone: 914 328-1578

Home and Family
121 Washinton St.
Mamaroneck , NY 10543

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Learning Disabilities

Learning Disabilities Association of New York State
90 S. Swan Street
Albany, NY 12210
(518) 436-4633
LDA@associationresources.org

Learning Disabilities Association of New York City
27 West 20th Street, Room 303
New York, NY 10011
(212) 645-6730; (212) 924-8896 (fax)
Arnold M.: amkorotkin@aol.com
http://www.learningdisabilitynyc.org/

National Center for Learning Disabilities (NCLD)

381 Park Avenue South Suite 1401
New York NY 10016
(212) 545-7510, Fax (212) 545-9665
(888)575-7373
http://www.ld.org

CHADD of Nassau County
PO Box 404,
Bellmore, NY 11710
(516) 733-4377
chadd_of_nassau_county@yahoo.com
http://www.chaddonline.org/chapters/chadd105.html

CHADD of Suffolk County

P.O. Box 2478
Ronkonkoma, NY 11779
(631) 981-9270
http://www.chaddonline.org/chapters/chadd160.html

International Dyslexia Association
Buffalo Branch
4625 Harlem Road
Snyder, NY 14226
(716) 839-2918

International Dyslexia Association
Capital District Regional Group
1046 Madison Ave.
Troy, NY 12180
(518) 271-9114
crn@taconic.net

Non-verbal Learning Disabilities Support Group
Meets monthly in Buffalo, New York
(716) 983-9836; (716) 741-5061
karenbutler@adelphia.net

Greater Rochester Attention Deficit Disorder Association (GRADDA)
339 East Ave, Suite 420
Rochester, NY 14604
http://gradda.home.isp-direct.com/

ADDRESS, Inc.
Norine Eaton
SUNY @ Buffalo
3435 Main St., Bldg 20
Buffalo, NY 14214
(716) 829-2244 ext. 35
addresswny@addresswny.org
http://www.addresswny.org

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Legal Advocacy

Protection and Advocacy Agency
New York Commission on Quality of Care

401 State Street
Schenectady, NY 12305-2397
(518) 381-7098
Email: marcelc@cqc.state.ny.us
http://www.cqc.state.ny.us/

Client Assistance Program
New York Commission on Quality of Care

401 State Street
Schenectady, NY 12305-2397
(518) 381-7098
Email: michaelp@cqc.state.ny.us
http://www.cqc.state.ny.us/

The Advocacy Center
590 South Avenue
Rochester, NY 14620
(585) 546-1700
Email: info@advocacycenter.com
http://www.advocacycenter.com

Advocates for Children of NY
151 West 30th Street, 5th Floor
New York, NY 10001
(212) 974-9779
Email: info@advocatesforchildren.org
http://www.advocatesforchildren.org

Legal Services of Central New York, Inc.
472 South Salina Street, Suite 300
Syracuse, NY 13202
(315) 475-3127; (866)475-9967
(315)475-3120 (TTY); (866)475-3120 (TTY)
(315) 475-2706 (fax)
Email: bwallbridge@wnylc.com
http://www.lscny.org

New York Lawyers for the Public Interest
151 West 30th Street, 11th Floor
New York, New York 10001
(212) 244-4664; (212) 244-4570 (fax)
Web: http://www.nylpi.org

New York State TRAID Project
New York State Office of Advocate for Persons with Disabilities

One Empire State Plaza, Suite 1001
Albany, NY 12223-1150
(518) 474-2825; (800) 522-4369 (V/TTY/Spanish, in NY); (518) 473-4231 (TTY)
Email: traid@emi.com
http://www.oapwd.org/

State Mediation System
Office of Vocational and Educational Services for Individuals with Disabilities (VESID)

One Commerce Plaza, Room 1624
Albany, NY 12234
(518) 486-7462
Email: lparis@mail.nysed.gov
http://www.vesid.nysed.gov/lsn

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Mental Health

New York State Office of Mental Health
44 Holland Avenue
Albany, New York 12229
1-800-597-8481 (toll-free)
Email: cocojls@omh.state.ny.us
http://www.omh.state.ny.us/

Mental Health Association of New York State

194 Washington Avenue, Suite 415
Albany, NY 12210-2317
(518) 434-0439; (800) 766-6177
Email: mhanys@mhanys.org
http://www.mhanys.org/

The Monroe County Chapter of the Federation of Families for Children's Mental Health
(a.k.a. Better Days Ahead Family Support Network) a service of The Mental Health Association of Rochester/Monroe Co., Inc.
339 East Avenue, Suite 201
Rochester, NY 14604
(585) 325-3145 ext. 16; (585) 325-3188 (fax)
Email: bda@mharochester.org
http://www.mharochester.org or
http://www.betterdaysahead.org

NAMI of New York State
260 Washington Avenue
Albany, NY 12210-1312
(518) 462-2000; (800) 950-3228
Email: naminys@knick.net
http://www.naminys.org/

Family Ties
MHA in Orange County
Family run Support Group for families with children/adolescents who have emotional, behavioral or social difficulties
20 Walker St.
Goshen, NY 10924
(845) 294-7411

National Association for the Dually Diagnosed
132 Fair St.
Kingston NY 12401
(914) 331-4336, Fax (914) 331-4569
(800) 331-5362
http://www.thenadd.org

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Neurological disabilities

ALS Association

Greater New York Chapter
116 John Street, Suite 1304
New York, NY 10038
800-672-8857
212-619-7409 (fax)
als@als-ny.org
http://www.als-ny.org
Upstate New York Chapter
PO Box 127
Elbridge, NY 13060
315-689-3380
315-689-3382
info@alsaupstateny.org
http://www.alsaupstateny.org
 

Epilepsy Foundation

Long Island
506 Stewart Avenue
Garden City, NY 11530
(516) 739-7733
Email: rdaly@epil.org
http://www.epilepsyfoundation.org/longisland/
New York City
305 7th Avenue, 12th Floor
New York, NY 10001
(212) 633-2930
Email: epsocnyc@aol.com
http://www.efnyc.org/http://groups.yahoo.com/group/nyadvocates/

Dysautonomia Foundation, Inc.
633 Third Avenue, 12th Floor
New York, NY 10017
(212) 949-6644
http://www.familialdysautonomia.org

Dysautonomia Treatment and Evaluation Center
Department of Pediatrics & Department of Neurology
NYU School of Medicine
530 First Avenue, Suite 9Q
New York, NY 10016
(212) 263-7225
http://www.med.nyu.edu./fd/fdcenter.html

American Parkinson’s Disease Association Information & Referral Center

Albany Medical College
Dept. of Neurology
215 Washington Ave Ext.
Albany, NY 12203
Nickerc@mail.amc.edu
518-452-2749
Fax: 518-452-5953
Pennisula Hospital
51-15 Beach Channel Dr
Far Rockaway, 11691
Bea.cordero@p-h-c.org
718-734-2876
Fax: 718-734-2614
NY College of Ostepathic Medicine
NY Institute of Technology
PO Box 8000, Northern Blvd.
Old Westbury, NY 11568
eginnet@nyit.edu
516-626-6114
Fax: 516-686-7890
Esposito I&R Center
Staten Is. Univ. Hospital
475 Seaview Avenue
Staten Island, NY 10305
Diane Lee: Dlee@siuh.edu
718-226-6129
Fax: 718-390-4605

Spina Bifida Association

Greater Rochester SBA

P.O. Box 3
Fairport, NY 14450
Phone: (585) 381-5471
Fax: (585) 264-9547
JoAnn Armstrong: JArmst4459~at~aol.com

SBA of Albany / Capital District
109 Spring Rd.
Scotia, NY 12302
Tel: (518) 399-9151
Email: SBAALBANY102~at~aol.com
http://www.sbaalbany.org/

SBA of Nassau County
218 White Ave.
New Hyde Park, NY 11040
Phone: (516) 354-4837
Laura Petranto: lp1020~at~optoline.net

SBA of Western New York

137 Warner Avenue
North Tonawanda, NY 14120
Phone: (716) 446-5595
Fax: (716) 735-7561
cynthia~at~madbbs.com
http://www.sbawny.org/

Spina Bifida and Hydrocephalus Association

382 Ridge Road
Scotia, NY 12302

Families Of Spinal Muscular Atrophy, Metro New York Chapter
P. O. Box 1713
North Massapequa, NY 11758
(631) 585-7761
Theresa Ferencsik, President -- metrony@fsma.org

Tourette Syndrome Association, Inc.
42-40 Bell Blvd.
Bayside, NY 11361
718-224-2999
http://www.tsa-usa.org/

Tourette Syndrome Association of Western New York
20 Thomas Jefferson Lane
Snyder, NY 14226
(716) 839-4430; (716) 839-1956 (fax)
Susan: conners~at~adelphia.net

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Parent Advocacy - Cross Disability

ARISE, Inc.
104 West Utica Street
Oswego, NY 13126
(315) 342-4088; (315) 342-4107 (fax)
info@ariseosw.org

Exceptional Family Member Program
Department of Defense Program for Active Duty Soldiers who have family members with special needs
1 Keller Army Community Hospital, Building 900
West Point, NY 10996
(845) 938-6881
laurina.goldstein@wp.amedd.army.mil

Family Support Project for the Developmentally Disabled
N. Central Bronx Hospital
3424 Kossuth Avenue, Room 15A10, Social Work Department
Bronx, NY 10467
(718) 519-4797

Families Together in New York State, Inc.
15 Elk Street
Albany, NY 12207
(518) 432-0333; (888) 326-8644 (in NY)
Email: info@ftnys.org
http://www.ftnys.org

The Family Resource Network, Inc
46 Oneida Street
Oneonta, NY 13820
(607) 432-0001; (800) 305-8814 (fax)
familyrn@dmcom.net
http://www.familyrn.org/

United We Stand
728 Driggs Ave.
Brooklyn, NY 11211
(718) 302-4313
and
312 S. 3rd Street
Brooklyn, NY 11211
(718) 302-4314
uwsofny@aol.com

LI-TECA (Long Island's Twice Exceptional Children's Advocacy)
48 18th Avenue
Sea Cliff, New York 11579
(516) 759-1624 mailbox 3
twice exceptional@hotmail.com
http://www.li-teca.org

Parent Network of WNY
(716) 332-4174
KMW@parentnetworkwny.org
http://www.parentnetworkwny.org/

Parent to Parent of New York State
P.O. Box 1296
Tupper Lake NY 12986
(866) 727-6970
http://www.parenttoparentnys.org

Parent Support Network
P.O. Box 284
Orangeburg, NY 10962
(845) 359-6090
info@parentsupportnetwork.org
http://www.parentsupportnetwork.org

Parent Training and Information Center (PTI)
The Advocacy Center
277 Alexander Street, Suite 500
Rochester, NY 14607
(716) 546-1700; (800) 650-4967 (in NY)
info@advocacycenter.com
http://www.advocacycenter.com/

Parents of Special Children, Inc.
2 C Tower Drive
Fulton, NY 13069
address-psc6000@aol.com
http://www.pscoswego.org

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Recreation & the Arts

Adaptive Sports Foundation
Ski Windham
C.D. Lane Road
Windham, NY 12496
(518) 734-5070
asfwindham@aol.com

Special Olympics New York
504 Balltown Road
Schenectady, NY 12304
518-388-0790 • 1-800-836-NYSO • Fax 518-388-0795

Special Olympics New York
211 East 43rd Street, 12th floor
New York, NY 10017
212-661-3963 • Fax 212-661-4658

Special Olympics New York
Monroe Developmental Center
620 Westfall Road
Rochester, NY 14620
585-271-5151 • Fax 585-271-5625

Sports Fitness & Fun, Inc.
Gymnastics and other activities for children with special needs and developmental disabilities.
470 Route 17 A
Florida, NY 10921
(845) 651-1000
Irene: ilerz@sportsfitnessfun.com
http://www.sportsfitnessfun.com

Best Buddies New York
930 Madison Avenue
Albany, NY 12208
(518) 482-4225; (518) 482-4232
SusannaAdams@bestbuddies.org
http://www.bestbuddiesnewyork.org

Sprout
Unique programs (travel, film festival, a make-a-movie program and a weekend music and art festival) for people with developmental disabilities.
893 Amsterdam Avenue
New York NY 10025
212-222-9575
888-222-9575
GoSprout@gosprout.org
http://www.GoSprout.org

VSA arts of New York City
18-05 215 Street Bayside, Suite 15N
Bayside, NY 11360
(718) 225-6305 (V, TTY)
Bbvsanyc@msn.com

WeMedia, Inc.
Media company covering issues important to the millions of people with disabilities interested in a quality life without compromise.
130 William Street
New York NY 10038
(646) 769-2837, Fax (212) 375-6266
http://www.wemedia.com

YAI
Recognized for the excellence of its local and international conferences, summer camp, and educational materials and curriculums.
New York NY
(212) 273-6182, (212) 290-2787 TDD,
http://www.yai.org/YAI.html

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Resource Lists


New York Government
http://www.nysegov.com/citGuide.cfm?superCat=82&cat=444&content=main

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Last updated: January 8, 2008 1:11 AM