Finally - Good news from the White House

Posted June 22nd, 2009 by Susan

THE WHITE HOUSE
Office of the Press Secretary
_______________________________________________________________________________________
FOR IMMEDIATE RELEASE
June 22, 2009
President Obama Commemorates Anniversary of Olmstead and Announces New Initiatives to Assist Americans with Disabilities
On the 10th anniversary of the landmark Supreme Court decision in the case of Olmstead v. L.C., President Barack Obama today celebrated that anniversary and launched “The Year of Community Living,” […]

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Sticks & Stones

Posted May 30th, 2009 by Susan

New! Sticks & Stones: Disabled People’s Stories of Abuse, Defiance and Resilience. Edited by Marsha Saxton. Published by the World Insititute on Disability. My essay starts p 79. http://tinyurl.com/lwz742
Buy a copy for yourself and your local library!

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Sad news from Germany

Posted May 25th, 2009 by Susan

UPDATE! Marco woke up today!!!!  June 4, 2009
I haven’t written in awhile about Marco, Sylvia, et al because it is all so sad and complicated.  Sylvia is doing wonderfully. She is pregnant with her new lover, Paul’s baby. She is considered to be a medical miracle. Marco is in a persistent vegetative state since he […]

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Aircraft Accessibility - New Rules

Posted May 12th, 2009 by Susan

Air Carrier Access Act: Aircraft Accessibility
Regulation effective May 13, 2009:
14 C.F.R. § 382.61 What are the requirements for movable aisle armrests?
(a) As a carrier, you must ensure that aircraft with 30 or more passenger seats on which passenger aisle seats have armrests are equipped with […]

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91 Arrested

Posted April 27th, 2009 by Susan

For Immediate Release:

April 27, 2009 

                                                                    
For Information Contact:

Bruce Darling 585-370-6690

Marsha Katz 406-544-9504
http://www.adapt.org
91 Arrested When ADAPT Told Obama Administration Won’t Support Inclusion of
Long Term Services in Health Care Reform
 
Washington, D.C.— Ten members of ADAPT  met with Obama Administration officials in the White House  today, and came away disappointed at the lack of […]

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From ADAPT!

Posted April 27th, 2009 by Susan

President Obama fails to lead on Community Choice Act

Take Action!

Tell the President and your Representatives that CCA must be part of healthcare reform!

This morning, ADAPT met with Nancy-Ann DeParle, the Obama administration’s healthcare czar (Counselor to the President and Director […]

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We Matter!

Posted February 22nd, 2009 by Susan

There are a million reasons why we matter, but sometimes we need statistics to back that up. It is not enough for businesses to care about meeting our needs our of the goodness of their heart - they need hard data. I found this article compiling a lot of data we need to have at […]

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More about Sylvia

Posted December 27th, 2008 by Susan

Got a report from her doctor/psychologist today.  She is fully awake and cognizant and wants to go home. She has signed papers so in the future her parents will not have the authority to turn off her life support. Marco, the father of the two year old daughter is her medical representative if she cannot […]

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Celebrate!

Posted December 26th, 2008 by Susan

It is exactly as before. Sylvia received her second dose of Ambien and promptly awoke from her coma.
It is the best possible Christmas present!

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Please pray for Sylvia

Posted December 25th, 2008 by Susan

I know I haven’t written in a long time, but today what I write is critical.  My friend Sylvia who has been in and out of coma the last 18 months needs you, me, us all to keep her foremost in our thoughts. Her parents have gone to court and have authorized the machines to […]

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